United We Stand - World IBD Day 2015

Today is World IBD day to raise awareness to those who suffer from Crohn's and Ulcerative  Colitis. People used to suffer from these diseases in silence but now more people are sharing and discussing their diseases and suffering with those around them. Some poeple rarely have flares while others suffer almost every day.  This year's global theme is "United We Stand" so those around the world how that they don't suffer alone. People were asked to share a 20 second vidoe describing how UC or Crohn's has affected them (sorry I forgot to do this). These powerful videos are from patients, spouses, parents, children, friends, doctors, nurses and care-givers from all over the world. Check out the links below of all the videos that were submitted.

I remember when I was diagnosed and knew no one else that had Crohn's Disease, I have met many interesting people in support groups, both online and in person that fight to cure Croh's and Ulcerative Colitis. No one has to suffer alone anymore. 

I encourage everyone to wear the IBD color of Purple today or any shirt that represents and raises awareness for IBD. I do not have much purple clothing so I am wearing my "Ask me abut my Crohn's Disease" t-shirr. and I have already had someone ask me about it! 

Wear your purple today to show your support for Wolrd IBD Day so those that are fighting daily can find a way to Live, Love and Laugh without pain and suffering.

#worldibdday #ibd #Crohs #ccfra

http://www.worldibdday.org/https://www.youtube.com/channel/UC8m3RC4S2Rmr4DfOdf8kKvQ

http://www.worldibdday.org/

Vacation time is almost here...

It's hard to believe that it's already May and summer is just around the corner. The boys are ready for school to be done so they can head to the beach with their grandparents. Many people are planning their vacation plans for places near and far. For those on TPN, traveling can be scary and worrisome.  Besides planning where, when and how to go on vacation, you have to plan out your supplies and work with your infusion company to get your supplies where you want them when you want them there. If you wan to go on a cruise or overseas, there are more things to take into consideration since each country has different rules about infusion therapy. Flying also has it's problems about what you can take on the plane and the easiest ways to get through TSA security checkpoints.

To help those on infusion therapy enjoy their vacations, ThriveRx is hosting a webinar, Traveling with TPN, on Wednesday May 13th at 1pm est with tips to make traveling easier. One of the best things about ThriveRx's webinars are that if you are you can't make the scheduled time, once you register a recorded link will be sent to you to watch at your convenience. You can register at this link:

https://attendee.gotowebinar.com/register/4291744990952749314

We haven't figured out what our plans are for the summer but I know that my fluids and supplies will be there when I arrive thanks to ThriveRx...now if they could only pack all my clothes then everything would be perfect! 

I hope everyone gets to take some R&R this summer to recharge their batteries so they can keep on Living, Loving and Laughing!